GUIDE FOR CARE AND SUPPORT DURING SERIOUS ILLNESS
Chapter 3: Care at Home: Family, friends, and professionals
Care for the caregiver: A practical guide
Here are some tips that may assist you in some of the practical aspects of caring for a loved one.
1. Learn as much about your loved one's medical condition and physical needs as you can. Family caregivers are an integral part of the health care team. If you have questions and concerns about medical issues, medications, or a change in your loved one's symptoms, please contact his or her physician or a member of the home health or hospice team.
2. Prepare the home environment for safety and comfort. Make sure you know where the emergency numbers are, and where the fire extinguishers are located. Make an escape plan. Have enough emergency supplies, medication, oxygen, and water on hand for 72 hours.
3. Consult with members of the health care team on special products that might improve safety and function, such as walkers, canes, wheelchairs, a raised toilet seat, grab bars, handrails, night light, hospital bed, over-bed table for eating, etc.
4. Use correct procedures to make care safer and easier. Be sure to learn and use proper lifting and moving techniques in order to protect your back from injury. Ask your health care team for information about 'body mechanics.'
5. Caregiving can mean a major change in your life. Don't be afraid to acknowledge how tough it can be to be a primary caregiver for a loved one. Know that you're doing your best.
6. Learn to manage stress. Take time each day for 'mini-breaks.' Go out for coffee. Call a friend. Exercise. Try to get enough sleep so that you feel rested. Eat healthily. Pray.
7. Ask your employer if you are covered under the federal law, “The Family and Medical Leave Act” (FMLA). If so, you may be able to take up to 12 weeks of unpaid leave per year, to care for a seriously ill spouse, child, or parent.
8. Say 'yes' to offers of help. Allow friends and family to help out when they can. Check with your doctor or insurance company about what kinds of professional home health or hospice help might be available.
Helpful resources.
- National Family Caregivers Association, 1-800-896-3650.
- Eldercare Locator, 1-800-677-1116.
- Your local area 'Agency on Aging.'
- Friends, family, and your spiritual community can also be sources of support.
Created by Compassionate Choices / Modified by Consoling Grace