Chapter 3

Outreach Support for Seriously Ill Persons and Their Families

Guide for Care and Support During Serious Illness

Introduction

Overview and acknowledgements

Health care and emergency phone numbers

Tips for those experiencing a serious illness

Chapter 1

Effective communication: Obtaining the health care information you need

At Diagnosis: A 'Print and Take' Form of Important Questions to Ask Your Doctor

During treatment: Gaining the information, care, and support you need

During Treatment: A 'Print and Take' Form of Important Questions and Information

Record of appointments

Notes

Chapter 2

Easing pain and discomfort: An overview

Communicating about pain: The path to comfort

Recording medications and treatments

Daily medications log

Chapter 3

Care for the caregiver: A healing prescription for self-care and respite

Care for the caregiver: A practical guide

Selecting home health or hospice care

National and regional resources

Daily log

Chapter 4

Questions to ask about your health care system

Insurance information

Record of payments

Chapter 5

An Introduction to Essential Conversations: The Prelude and the Music

Ground rules for helpful conversations

Chapter 6

An Overview: Guiding families through important decisions

Living Will and Power of Attorney: What makes sense?

Medical Decision Making: Questions to answer

Living Will and Power of Attorney: Next steps

Chapter 7

Introduction to spiritual growth in time of illness

A comforting selection of reflections, scripture, prayers, and hymns

Internet resources for the Seriously Ill

End-of-Life Articles and Resources

GUIDE FOR CARE AND SUPPORT DURING SERIOUS ILLNESS

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Chapter 3: Care at Home: Family, friends, and professionals

National and regional resources

For general information on serious illness and available supportive programs, you may want to contact the following national and regional organizations.

Organization Phone Web site
American Cancer Society 1.800.227.2345 www.cancer.org
American Gastroenterological Association 1.301.654.2055 www.gastro.org
American Heart Association 1.800.242-8721 www.americanheart.org
American Lung Association 1.800.548-8252 www.lungusa.org
National Multiple Sclerosis Society 1.800.344.4867 www.nationalmssociety.org
ALS (Lou Gehrig's) Association 1.800.782.4747 www.alsa.org
Alzheimer's Association 1.800.272.3900 www.alz.org
American Pain Society 1.847.375.4715 www.ampainsoc.org
Candlelighters Childhood Cancer Foundation 1.800.366.2223 www.candlelighters.org
Caring Connections 1.800.658.8898 www.caringinfo.org
Children's Hospital Medical Center - Palliative Care 1.206.987.4751 www.seattlechildrens.org
Fred Hutchinson Cancer Research Center 1.800.422.6237 www.fhcrc.org
National Cancer Institute 1.800.422.6237 www.cancer.gov
Pain Net, Inc. 1.614.481.5960 www.painnet.com
Providence Hospice of Seattle 1.888.782-4445 www.providence.org
University of Washington Multidisciplinary Pain Center 1.206.598.3300 www.uwmedicine.org/ PatientCare/ PatientCareOverview/
Washington State Medical Association 1.800.552.0612 www.wsma.org

 

If this list does not include the information you are seeking, we apologize. Please consider asking your physician or health care provider if they are aware of a more helpful organization for your situation. Also, most public libraries can help you gain access to the Internet, and many communities have local programs which offer support and information.

Created by Compassionate Choices / Modified by Consoling Grace.


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