Chapter 3

Outreach Support for Seriously Ill Persons and Their Families

Guide for Care and Support During Serious Illness

Introduction

Overview and acknowledgements

Health care and emergency phone numbers

Tips for those experiencing a serious illness

Chapter 1

Effective communication: Obtaining the health care information you need

At Diagnosis: A 'Print and Take' Form of Important Questions to Ask Your Doctor

During treatment: Gaining the information, care, and support you need

During Treatment: A 'Print and Take' Form of Important Questions and Information

Record of appointments

Notes

Chapter 2

Easing pain and discomfort: An overview

Communicating about pain: The path to comfort

Recording medications and treatments

Daily medications log

Chapter 3

Care for the caregiver: A healing prescription for self-care and respite

Care for the caregiver: A practical guide

Selecting home health or hospice care

National and regional resources

Daily log

Chapter 4

Questions to ask about your health care system

Insurance information

Record of payments

Chapter 5

An Introduction to Essential Conversations: The Prelude and the Music

Ground rules for helpful conversations

Chapter 6

An Overview: Guiding families through important decisions

Living Will and Power of Attorney: What makes sense?

Medical Decision Making: Questions to answer

Living Will and Power of Attorney: Next steps

Chapter 7

Introduction to spiritual growth in time of illness

A comforting selection of reflections, scripture, prayers, and hymns

Internet resources for the Seriously Ill

End-of-Life Articles and Resources

GUIDE FOR CARE AND SUPPORT DURING SERIOUS ILLNESS

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Chapter 3: Care at Home: Family, friends, and professionals

Daily Log

Most people with a serious illness will have more than one health-care provider. It may be family members, friends, health aides, and other professionals. The following log may be helpful to assure information is recorded and communicated to the next provider.

Caregiver: ________________________________________________

Association: _______________________________________________

Date: ______________________ Shift Hours: ___________________

For Questions Call: _________________________________________

Main Daily Goals:







Medications - (See DAILY MEDICATIONS LOG)

Diet:

Food Amount Time of Day Comments







Activities:

Activity How Long Time of Day Comments







Pain/Discomfort:

How bad?(1-10, 10 being the worst) _________ How Long _________

Time of day __________ Treatment/Result ______________________


Nausea/Constipation/Diarrhea:







Overall/Other Comments:







Created by Compassionate Choices.


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Next page: Chapter 4: The Health Care System: Questions to ask about your health care system