Chapter 1

Outreach Support for Seriously Ill Persons and Their Families

Guide for Care and Support During Serious Illness

Introduction

Overview and acknowledgements

Health care and emergency phone numbers

Tips for those experiencing a serious illness

Chapter 1

Effective communication: Obtaining the health care information you need

At Diagnosis: A 'Print and Take' Form of Important Questions to Ask Your Doctor

During treatment: Gaining the information, care, and support you need

During Treatment: A 'Print and Take' Form of Important Questions and Information

Record of appointments

Notes

Chapter 2

Easing pain and discomfort: An overview

Communicating about pain: The path to comfort

Recording medications and treatments

Daily medications log

Chapter 3

Care for the caregiver: A healing prescription for self-care and respite

Care for the caregiver: A practical guide

Selecting home health or hospice care

National and regional resources

Daily log

Chapter 4

Questions to ask about your health care system

Insurance information

Record of payments

Chapter 5

An Introduction to Essential Conversations: The Prelude and the Music

Ground rules for helpful conversations

Chapter 6

An Overview: Guiding families through important decisions

Living Will and Power of Attorney: What makes sense?

Medical Decision Making: Questions to answer

Living Will and Power of Attorney: Next steps

Chapter 7

Introduction to spiritual growth in time of illness

A comforting selection of reflections, scripture, prayers, and hymns

Internet resources for the Seriously Ill

End-of-Life Articles and Resources

GUIDE FOR CARE AND SUPPORT DURING SERIOUS ILLNESS

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Chapter 1: Communicating with your doctor: Questions and Answers

During Treatment: A 'Print and Take' Form of Important Questions and Information

Common questions to ask and important information to share with your health care provider when you are undergoing treatment for serious illness.

  • How is my treatment going? As expected? __________________

    ______________________________________________________
  • Will there be additional tests to determine the outcome of my past treatments? What will they be? What are they like? When will they be done? ______________________________________

    ______________________________________________________
  • I want to describe how I've been since I last spoke with you:
    • In General: ________________________________________
    • Pain & Discomfort: (Scale of 1-10) ____________________
    • Appetite/Nausea:____________________________________
    • Constipation/Diarrhea:________________________________
    • Sleep Pattern: _____________________________________
    • Energy/Activities: __________________________________
    • Medications Taken: ________________________________
    • Result of Medications: _______________________________
  • I have questions about: _________________________________

    ______________________________________________________
  • What can be expected over the next week, 3-6 months?

    ______________________________________________________

    ______________________________________________________
  • What medicines are you now prescribing for me? Do they have side effects?

    ______________________________________________________

    ______________________________________________________
  • What other supportive services can you recommend? When would it be helpful to have a home health care referral?

    ______________________________________________________

    ______________________________________________________
  • I understand my next appointments are:

    ______________________________________________________

    ______________________________________________________

Created by Compassionate Choices.


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Next page: Chapter 1: During treatment: Record of Appointments